Characterization of Strength and Function in Ambulatory Adults With GNE Myopathy

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Characterization of Strength and Function in Ambulatory Adults With GNE Myopathy

OBJECTIVE To characterize the pattern and extent of muscle weakness and impact on physical functioning in adults with GNEM. METHODS Strength and function were assessed in GNEM subjects (n = 47) using hand-held dynamometry, manual muscle testing, upper and lower extremity functional capacity tests, and the GNEM-Functional Activity Scale (GNEM-FAS). RESULTS Profound upper and lower muscle wea...

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GNE myopathy (previous names: HIBM, DMRV, IBM2) is a unique distal myopathy with quadriceps sparing. This recessively inherited myopathy has been diagnosed in various regions of the world with more than 150 disease-causing mutations already identified. Several of those are proven or suspected to be founder mutations in certain regional clusters and are described in this review. The review also ...

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Background. Hereditary inclusion body myopathy is caused by biallelic defects in the GNE gene located on chromosome 9p13. It generally affects adults older than 20 years of age. Methods and Results. In this study, we present two Turkish sisters with progressive myopathy and describe a novel mutation in the GNE gene. Both sisters had slightly higher levels of creatine kinase (CK) and muscle weak...

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ژورنال

عنوان ژورنال: Journal of Clinical Neuromuscular Disease

سال: 2017

ISSN: 1522-0443

DOI: 10.1097/cnd.0000000000000181